Just once in my life, I’d like to go to a doctor’s office and walk out with a diagnosis of “Just take these few pills and you’ll be right as rain in no time.” But, no, that’s not my luck or life. I went into my PCP a few weeks ago, because the little nodules in my palms (painless) we suddenly growing rapidly and were very rock hard to the touch. She sent me over to a hand specialist with the expectations they were just simple ganglion cysts that can be removed in a simple office visit. NOPE. These are not cysts. I have Dupuytren’s Disease, which could potentially cause my fingers to curl into my palms and become immovable. It’s a genetic disease, a faulty gene in my DNA is the culprit, my body is creating fibrous scar tissue on healthy muscle, skin and tendons, sending out fibers to connect together tendons and tissue like a spider web, pulling the fibers taught and hard (Like it’s trying to knit a wound together where there is no wound.)
There is no cure, surgery to cut the fibers when it gets to that stage is the only option and it involves skin grafts too. It’s very invasive because the fibers also connect to nerves, one bad CUT in surgery and the nerve is severed. It’s also not a permanent cure. Once this gene is triggered, it doesn’t stop. The surgery would have to be repeated every few years. Thankfully, I’m not that far along yet. But I am showing rapid fibrous growth, not a good sign. Rather heartbreaking news for an author and an artist who rely on using their hands. So I am NOT in the best of moods today as I walk out of yet another Doctor’s office with ONE MORE DISEASE added to my laundry list of Diseases.
- · Severe Pulmonary Disease
- · Chronic Acute Asthma
- · Type II Diabetes
- · Diabetes Mellitus Peripheral Neuropathy
- · Degenerative Bone Disease (Osteoporosis)
- · Osteoarthritis
- · Gastroparesis (Neuropathy of the Stomach)
- · Myofascial Pain Lower Back Protruding L3, L4, L5 Vertebrae
- · Pre-Renal Neuropathy (Progressive Kidney failure,)
- · And now Dupuytren’s Disease.
I don’t need to have every medical condition in the book thanks! It freaking sucks.
People call me “strong” and “brave” and a “fighter”. Well, you know what… it’s only because I have to be. There’s no secret to coping, you just *DO*. You have two choices. Live life as best you can for as long as you can and do everything Doctor’s tell you to try and stay alive just one more day. *Or* you can give up. I may be a lot of things, but I have never been a quitter. Never give up, never surrender!